It is a tradition by some Facebookers to reflect on a year since a particular photo was taken and thus in accordance with that tradition I would like to reflect upon a year since this photo of me last July when I spent five days incarcerated 24×7 in a bedroom at the epilepsy hospital so that the doctors could measure the electrical activity in my brain.
Since then it has been a very busy year for me. After the unit could not understand what was wrong I went onto see one naturopathic doctor, one neuropsychiatrist, three neurologists and two neuropsychologists. I’ve also seen my mum quite a lot too. At the end of it all I have a diagnosis – frontal lobe epilepsy.
This diagnosis has helped me to fully understand what my difficulties are. The frontal lobe controls your emotional expression, problem solving, memory and language, judgment. If it doesn’t work, because abnormal electrical impulses are happening in your brain every day, like mine, you’re basically stuffed. Therefore, in contradiction to popular thinking, I have concluded that you do not control your thinking – your brain does. It now seems a bit bizarre to me that most people know more about the function of tonsils than they do about their frontal lobe, but that is the strange world that we live in.
At the end of my hectic year experimenting with various anti-epileptic drugs, therapy and minerals I have not been able to resolve my problem. In fact one anti-epileptic drug made my condition worse. This is I believe due to the fact that epilepsy is an extraordinarily difficult condition to treat – conventional drugs only effectively treat two-thirds of patients and I am one of the unfortunate third that remain currently untreatable –even having tried out alternative medicine.
This year some people have suggested to me that I should give up on my little battle to find a cure to my ailments. I should just find a way of living with my illness, like other people do, with chronic conditions. But I just can’t give up. I want better life for myself and my children. And I live in the, perhaps false, hope that I will find one. My next step is in October to start a medicalised diet – called the ketogenic diet. It is similar to the Atkins diet but I will have a neurologist and dietician to aid me.
In other developments this year I have written 15,000 words of the book, London City – The First 30 Years (this is my father’s project, which realising that I needed something to do and that I could write, he kindly found a job for me). For every year from 1997-2017 I have summarised world news so it can be compared to what was happening at London City Airport in that year. Don’t ask me about to recall anything that has happened in these years because I haven’t retained much of what I have written. But nevertheless I have written it. I have also taken a course in copywriting and life-writing and met some interesting people along the way. I have been to one batmitizvah, two barmitzvahs and two weddings and celebrated my 40th along with my children’s nineth, sixth and fourth birthdays (and soon to celebrate my husband’s 40th) .
So what have I learnt this year? I have learnt that medical science has much to learn about the brain; that people are not thankful enough that their brains work properly; that only God can truly judge another person because only She knows what is going on inside their head; that it is commonplace to pray for another person with a physical health condition but rare to pray for someone with a mental health condition and finally that it is important to laugh at your problems because sometimes if you don’t laugh you will cry.
I hope you had a good year too. Thank you for reading. I really do appreciate your support.
2 thoughts on “30. 6th July 2017 – One year on”
Read your blog with interest & hope you find something to help, also that the book does well. Sorry you had to change your babysitting schedule, as your parents went out with us last night, but I think they enjoyed the event @ Bushey Shul to celebrate American Independence. The Elvis Presley entertainer turned out to be a relative of your Uncle Maurice, so both chatted to him.
PG see you @ the Dad’s birthday party in October so meanwhile Shabbat Shalom.
No problems Josie – Mum has to have a night off occassionally and glad you enjoyed elvis schmelvis